I had my
weekly blood/labs/doctor visit today at the Fred Hutchinson in Seattle for the
clinical trial I am on.
A Partial
Update On What The ABT-199 Has Done In Two Weeks Have Been On This Drug Daily
Day one of
taking the daily ABT-199 pill versus 2 weeks later of a daily pill
``````````````````````````````````````````````````````````````````````````````````````````````````````
WBC 11,870 ~
5,670 (Normal is anywhere between 4.3 and 10.0)
(Also significant
as my WBC went from 8,100 to 11,870 in one week after the 7 day wait from the
first pill to taking the daily pill)
Lymphocytes
(ALC) 7.84 ~ 2.38 (Anything over 4.8 is considered high)
Some very
good results in only 2 weeks of taking a daily pill!! YAY!!!!!
The first
week was 50 mg a day, the 2nd week was 150 mg a day. And tomorrow, the
beginning of week 3 will have me at 1,200 mg a day.
I asked the
trial coordinators why they were picking on me as the biggest known dose they
know of is 800 mg a day. They smiled and said yes we are, and because partially
Abbott (who is putting on the trial), said I was the youngest and healthiest,
without other underlying health problems, who is currently on the trial with
the 6Q, 11Q and 13Q deletions. And with an un-mutated status showing CD5, CD20,
CD38, CD19, CD45.
Did I hear BINGO out there?
I asked about the ones on the trial with the 17p, but only got an answer that I was over 10 years younger and much healthier than those. (Ha, calling someone with CLL/SLL healthy?). So I guess I get to be the lucky lab rat?!?
I asked about the ones on the trial with the 17p, but only got an answer that I was over 10 years younger and much healthier than those. (Ha, calling someone with CLL/SLL healthy?). So I guess I get to be the lucky lab rat?!?
My new breakfast of champions.
Two 300 mg pills of Allopurinol (with a low fat breakfast, usually a bowl of oatmeal),
Then twelve 100 mg pills of the ABT-199 all within 30 minutes of eating the low fat
breakfast, (plus it takes just a bout a full bottle of water to down the 12 pills!)
Needless to say I am FULL!!
Bonaparte.....................
Wow what a high dose! I hope the pill isn't the size of Montana!! Love you Dad!
ReplyDeleteGreat results! Keep up the good fight, we're all with you here. Let us know if there's anything we can do to help.
ReplyDeleteHi,
ReplyDeleteI have a quick question about your blog, would you mind emailing me when you get a chance?
Thanks,
Cameron
Not sure if anybody replied you. That was the last posting. Randy has passed away the next day after writing this post.
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